Endometriosis, my experience.
People usually assume I’m fine cause I don’t look sick, but I do have an invisible chronic illness called endometriosis.
And in today's blog post, I want to share with you my journey with endometriosis and how I live with it.
So, what is endometriosis?
Endometriosis is a disorder in which tissue similar to the tissue that forms the lining of your uterus grows outside of your uterine cavity. The lining of your uterus is called the endometrium. Endometriosis occurs when endometrial tissue grows on your ovaries, bowel, and tissues lining your pelvis. It’s unusual for endometrial tissue to spread beyond your pelvic region, but it’s not impossible. Endometrial tissue growing outside of your uterus is known as an endometrial implant.
The hormonal changes of your menstrual cycle affect the misplaced endometrial tissue, causing the area to become inflamed and painful. This means the tissue will grow, thicken, and break down. Over time, the tissue that has broken down has nowhere to go and becomes trapped in your pelvis. Endometriosis is a common gynecological condition, affecting up to 10 percent of women. You’re not alone if you have this disorder.
Informations from: https://www.healthline.com/health/endometriosis
Now, a little bit about myself:
I had my periods at the age of 12, which is normal but my periods weren't exactly "normal". By that, I mean that I never stop bleeding. My periods were almost every day. I had them for a week, then nothing for a few days and bam, periods again! So both my mom and I were a little bit confused, so, we went see multiple doctors who said that my problem was "I didn't accept (mentally speaking) having my periods". And honestly, this part was half true. I mean, having your periods almost every day isn't a cakewalk!
The second symptom is also very fun, the pain! I was like: "that b*tch is very painful!!". The pain I had and still have is hard to describe. Sometimes it feels like a car just crushes me, or someone is doing voodoo on me... anyway it's very painful.
And then, I slowly started to have all the others symptoms like pain in the lower abdomen before and during menstruation, cramps one or two weeks around menstruation, heavy menstrual bleeding, discomfort with bowel movements, lower back pain, migraines, vomiting, nausea, weakness, stress and more...
At the age of 14, I found an amazing gynecologist, a woman, who explains to me that I should take birth control to manage the irregular menstrual cycle. It was an excellent idea, I was very excited to finally have a regular cycle but, it wasn't that easy! I had to take 5 different birth control before finding THE one who would work on me.
After multiple medical exams, my gynecologist told me that I have endometriosis. Endometriosis is classified into one of four stages (I-minimal, II-mild, III-moderate, and IV-severe) and luckily for me, I am at stage II.
Now, I am 20 years old, my endometriosis is still there but I learned how to live with it. I am under birth control to manage my cycle. I try to eat healthily, a lot of iron, and fiber to help with excessive bleeding. I also take vitamins every day to manage my weakness and my energy. I had to schedule my work in a way that my day off is the 1st day of my periods, cause I can't leave my bed. And, I always have tons of pads, wipes, and an extra panty in my bag.
If I am sharing my illness with you, it’s not because I want you to feel sorry for me, it’s just cause I want you to understand why I am who I am and also to share #endometriosisawareness. All the women out there who have endometriosis, face huge challenges every day. Chronic illness is serious and you should be aware of it!